Data collection (page 1 of 3)

For an introduction to data collection issues, see our page on including intersex in forms and our page on researching intersex populations

Intersex in surveys and forms

Joint statement on the 2021 Census

Intersex Human Rights Australia and the National LGBTI Health Alliance issue this statement following news reports on the 2021 Census.

Inters

Researching intersex populations

Advice and recommendations on including people born with variations of sex characteristics in research studies and surveys.

Orchid

Submission to the AHRC on protecting rights in medical settings

We are pleased to share our submission to the Australian Human Rights Commission in respect of its inquiry on protecting the human rights of people born with variations in sex characteristics in the context of medical interventions. The submission has been kindly endorsed by the AIS Support Group Australia (AISSGA), Disabled People’s Organisations Australia (DPOA),…
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My Health Record logo

My Health Records

At present, a minority of Australian have digital health records, and such records are not used routinely. As the number of people with digital records increases, it is likely that they will increasingly be used as a way of documenting and tracking our health. The implementation of the government’s national My Health Records scheme for…
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Victorian government logo

Gaslighting in Victoria

In mid 2016, OII Australia made a submission to the United Nations Committee against Torture documenting human rights violations against intersex people in Australia. Since around that date, the Department of Health and Human Services in Victoria has systematically removed evidence of human rights violations, including psychosocial justifications for surgeries such as “marriage” prospects, and…
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Darlington retreat

Darlington Statement

The Darlington Statement is a joint consensus statement by Australian and Aotearoa/New Zealand intersex organisations and independent advocates, agreed in March 2017. It sets out the priorities and calls to action by the intersex human rights movement in our countries.

Demographics - an icon of a pie chart showing a quarter slice

Demographics

The diversity and demographic characteristics of intersex people are not widely understood. This page presents details from an independent Australian sociological survey of 272 people born with atypical sex characteristics in 2015.

Intersex: Stories and Statistics from Australia

New publication “Intersex: Stories and Statistics from Australia”

We are delighted to announce that the 2015 survey of people born with atypical sex characteristics has now been published. This survey was an independent research project led by Dr Tiffany Jones. The book has been peer reviewed and published by an academic publisher, Open Book Publishers. The strong team of co-authors includes a reference…
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Advance notice: “Intersex: Stories and Statistics from Australia”

Advance notice: “Intersex: Stories and Statistics from Australia”

In February, a report of last year’s survey of people born with congenital atypical sex characteristics will be published. 272 people with atypical sex characteristics responded to the survey, enabling a comprehensive analysis in the largest study of intersex Australians yet conducted. It will be entitled “Intersex: Stories and Statistics from Australia” and the authors…
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OII Australia logotype

Submission to the Australian Bureau of Statistics on proposed sex and gender identity standards

OII Australia and many other stakeholders were recently invited to respond to draft proposals for sex and gender identity standards. The proposed sex standard includes purported biological definitions of male, female and other, and the proposed gender identity standard reproduces the same purported biological definitions. We have significant concerns about these: ABS Proposed Sex Standard…
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