Intersex Human Rights Australia

An email from Andrology Australia has been circulating, asking for men with Klinefelter Syndrome to take part in the study.

Klinefelter’s Syndrome is the most common chromosome disorder in males (47XXY), affecting approximately 1 in 650 males. While this is estimated to represent almost 15,000 males in Australia, up to 70% of cases remain undiagnosed; even though the men may benefit from treatment. Despite decades of work on the medical aspects of Klinefelter Syndrome, almost nothing is known about how diagnosis with Klinefelter Syndrome impacts psychosocially on an individual, and how this is influenced by age at diagnosis.

Andrology Australia, together with the Murdoch Childrens Research Institute, Prince Henry’s Institute and Monash University, is undertaking a unique qualitative study to determine how treatments and interventions accessed at different ages affect biomedical and quality of life outcomes in adulthood.

Men with Klinefelter Syndrome aged 18 years and older, but diagnosed at all different ages (including prenatally), are invited to take part in the study.

To register your interest or for more information, please email your contact details to klinefeltersyndrome@gmail.com or call Amy Herlihy on (03) 8341 6370.

OII Australia is aware of the existence of many women with the XXY karyotype, as well as those XXY people who are androgyne or neuter. We have emailed the above address asking if other XXYs are also to be included in this study, and await the reply with interest.